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Patient representative for study measuring quality of life in cancer patients undergoing chemotherapy treatment
November 27, 2017
For: People who are having, or have ever had, chemotherapy treatment for any cancer
What: Researchers based in the Bristol Medical School and the Bristol Haematology and Oncology Centre are carrying out an NIHR funded study to understand how patients who are having chemotherapy treatment for cancer answer questionnaires about quality of life. As quality of life is changing all the time during chemotherapy treatment, we want to assess whether the standard questionnaires, which ask about ‘health today’ or ‘health over the past 4 weeks’, give us meaningful information about how a patient feels during treatment.
We also want to know how much the wording of the question affects the results and determine when is the best time to ask about quality of life and how many times to ask during a treatment cycle, with the aim to improve care.
We are looking for people to be involved as patient representatives to provide feedback on patient invitation packs, take part in discussions about the best wording to use in questionnaires, and based on your own experience of having chemotherapy, to provide a patient’s perspective to the research.
When: The project starts in January 2018 and finishes in Dec 2020. There will be 3 meetings each year, which will each last roughly 2-3 hours
Where: Bristol – Canynge Hall, 39 Whatley Road, Bristol Medical School, University of Bristol, BS8 2PS
Payment: We will cover travel costs, pay £75 per meeting and provide light refreshments