Volunteers with learning disabilities quality checked GP practices in Swindon

Healthwatch Swindon have recently completed a report about nine quality checking visits made to GP practices and dental surgeries in Swindon. The visits were undertaken by supported volunteers with learning disabilities between August 2018 and April 2019.

According to NHS England, “Quality checking is where people with a learning disability, autism or both are employed to help us look at the quality of the services they use and tell us how we can make them better.

Healthwatch Swindon worked with Swindon Advocacy Movement to recruit and train volunteers and support them to undertake the visits.

Whilst all providers made some specific arrangements to meet the needs of people with learning disabilities or on the autistic spectrum there are common and consistent themes and recommendations for change or improvement in all the reports. Practices should bear in mind the requirement to make reasonable adjustments and the guidance available.

The volunteers made three main recommendations which were common to all the premises visited:

  • Improved physical access including parking arrangements and door opening.
  • Provision of easy read signage and information throughout – both inside and outside buildings.
  • Clarity of displayed information.

You can read the full report here.

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Patient voices are leading to improvements of Somerset’s adult safeguarding service

New feedback gathered by Healthwatch Somerset on the county’s Adult Safeguarding service will be used to improve it for the future.

Healthwatch Somerset is the county’s independent health and social care champion. They listen to what people like about local health and care services, and what could be improved. Better communication through the safeguarding process and clearer information on staying safe in the future were just some of the recommendations made by families, carers and those who have been using the Somerset Adult Safeguarding service.

The Somerset Adults Safeguarding service, which protects an adult’s right to live free from abuse and neglect, dealt with 1,830 concerns in 2017/18 but only received feedback from six people.

Somerset County Council, who run the service, approached Healthwatch Somerset to help develop a new way of improving the service using the voice of the people who use it.

Emily Taylor, Manager of Healthwatch Somerset, said: “We worked closely with the Adult Safeguarding Team to design a questionnaire and considered an approach that would be effective but also deliverable by the team going forward.

“Our volunteers contacted people who had been through the safeguarding process. Several respondents said that they did not always know what was happening throughout the enquiry and that they were not being asked their opinion on what they wanted to happen.

“We recommend key questions are asked and recorded throughout the enquiry. This would help to check people’s understanding of what’s happening and their feelings about their level of involvement in the enquiry.”

Emily continued: “Half of respondents said that they either didn’t get any information or would have liked more information about staying safe in the future. We recommend that key agencies review the information made available to adults at risk and their advocates about how to stay safe.”

A spokesperson for Somerset Adult Safeguarding Service added: “As a service we thank Healthwatch Somerset for their support and enthusiasm in their undertaking of this pilot, the findings have far exceeded our original expectations.

“We will actively work towards enhancing service user engagement into the safeguarding process to ensure their voice is heard.”

You can read the full findings in their report Evaluation of Somerset Safeguarding Service: User Feedback Process.

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New digital health training well received

On 28 March 2019 People in Health West of England and Bristol Health Partners ran a new training session for patients and public contributors to learn about digital health and use of data.

The workshop gave an overview of how digital technology and data are being used in health and care and what this means for patients. Participants were introduced to the concepts by local speakers and had the opportunity to share their thoughts through interactive games and discussions.

The aim was for participants to be better informed to contribute to conversations on data and digital service design and development. Feedback from the day was really positive with all respondents rating the training as either ‘very good‘ or ‘good‘ in improving knowledge of digital health and uses of data. You can read more detailed feedback in the report below.

“Thanks for making it understandable for non-technical people”

“Invigorating, stimulating, exciting day; thank you”

As far as we know, it is the first training of its kind in the UK. The workshop was designed by John Kellas (Community Innovation and Engagement Consultant working with Bristol Health Partners) in collaboration with a design and facilitation team. The team are planning to run a second session in the Autumn and publish a resource pack to help others run similar sessions across the country.

Olly Watson, Senior Project Manager at Bristol Health Partners has produced a report from the first pilot session which you can read here.

If you are involved in work to increase the patient and public voice in digital health and data initiatives, do get in touch at hello@bristolhealthpartners.org.uk or enquiries@phwe.org.uk

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Do you want to share your experience of health or care services?

Care Opinion is a place where you can share your experience of health or care services, and help make them better for everyone.

Using a simple online form you can share your story. It could be a story about you, or someone close to you. You can say what happened, what was good, and what could have been better.

Your story may get published and shared with staff in the services who need to see it. You can also see other people’s stories and see how stories are leading to change.

Care Opinion think that by sharing honest experiences of care, we learn to see the world differently. Working together, we can all help make care better.

They are a non-profit organisation, funded mainly through subscriptions from health and care organisations and have been sharing people’s experiences of health and care services online since 2005. They have built a national and international reputation for their innovative and value-led approach to online feedback.

Find out more on their website or from this short video

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The UCL Centre for Co-production in Health Research is recruiting

University College London (UCL) are advertising for a Project Coordinator to join the Centre for Co-production in Health Research team. They are looking for someone interested in co-production, co-creation and health research who is keen to learn more. The role can be part time or full time and will be for 4 months initially with a hope to make the role longer term.

The deadline for applications is 11pm on Wednesday 1 May. Have a look at the job description here.

To find out more about this role and how to apply have a read of their latest blog. You do not need experience of having worked in a university to apply.

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Implementing patient and public involvement in antimicrobial medicines research

On 13 March 2019, Andy Gibson, Associate Professor Patient and Public Involvement, and Michele Kok, Research Associate in Public Health at the University of the West of England, together with two colleagues from North Bristol NHS Trust, conducted an open patient and public involvement (PPI) workshop at the annual Combatting Antibiotic Resistance in Europe (COMBACTE), General Assembly held in Bucharest, Romania. COMBACTE is a multi-million pound, European-wide, public-private partnership designed to stimulate the development of new antimicrobial drugs.

This workshop was to promote and support the use of a toolkit and practical guide for involving patients and the public in antimicrobial medicines development research, which the team produced in collaboration with the PPI Panel for Antimicrobial Drugs as part of COMBACTE-MAGNET’s Work Package 6i.

The hour-long workshop was attended by 12 participants from a range of organisations and job roles, including principal investigators from industry and academia, and the Chair of the European Forum for Good Clinical Practice. The workshop focused on PPI in two specific stages of the antimicrobial medicines development lifecycle; research agenda-setting; and clinical trials. These were identified by participants ahead of the workshop as being topics most important and relevant to their own research.

The excellent attendance and engagement at the workshop were indicative of an increased awareness and interest in PPI within the COMBACTE consortium, and across Europe more generally. This was highly encouraging to the team and set the tone for Andy’s talk on PPI at the COMBACTE-MAGNET General Assembly the next morning.

Although the PPI toolkit focuses on antimicrobial medicines development research, its content is applicable to other areas of medicines development, and potentially to other areas of acute clinical research. To find out more about the toolkit or to arrange for a similar PPI workshop, please email andy.gibson@uwe.ac.uk or michele.kok@uwe.ac.uk

 

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Sandra Tweddell is Diabetes UK volunteer spotlight

Sandra Tweddell, Co-chair of the People in Health West of England (PHWE) operational group, has been put under the spotlight for her extensive volunteer work for Diabetes UK.

Sandra has been volunteering with Diabetes UK since November 2010. Having lived with Type 1 diabetes since 1961 she is very conscious of varying levels of diabetes care across the country. As a result, she wanted to work to ensure that people with diabetes receive the best possible care to enable them to understand and manage their condition. Moving to Bristol, she found no local support groups so was instrumental in developing the structure of the Bristol Diabetes Support Network, which included a Strategy group involving members of Bristol Clinical Commissioning Group and Bristol Community Health. This provided a forum for two-way communication of people’s experiences of diabetes care and developments in diabetes care.

We, too, have benefited from her tireless contributions, as Sandra has been a member of the PHWE Operational Group since 2016, and become the public contributor Co-Chair in November 2018.

Click here to read her full story on the Diabetes UK website.

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North Bristol NHS Trust are developing a device for rapid diagnosis of Urinary Tract Infection

Urinary tract infection (UTI) is a common and unpleasant problem affecting thousands of people. GPs and others in primary care often diagnose patients based on symptoms, as the current urine testing methods to look for bacteria and inflammation can be slow and unreliable. As a result, antibiotics are often prescribed before there is a confirmed diagnosis of UTI. This prescription of antibiotics can be harmful to the patient if there is no infection and also impacts the wider community due to increasing risk of antibiotic resistance.

North Bristol NHS Trust are developing a device that will test for UTI quickly, safely and reliably in GP surgeries to ensure the correct diagnosis and treatment for patients. To support this, they are running workshops with patients and key staff members in GP surgeries to understand how it will fit within current working practices, who the user of the device might be, and what design restraints it needs to have (such as size storage etc.)

A series of workshops will take place over the next 18 months, these will cover:

  • Understanding the context for the device, the user and design restraints
  • Providing feedback on prototypes of the device
  • Urine sample collection methods
  • Training and education for the final product.

North Bristol NHS Trust would like to invite GP’s, Practice Nurses, practice receptionists, pharmacists and any member of primary care with experience of dealing with UTI’s in primary care to attend as many workshops as you are able to.

During the workshop, you will be asked to provide your views and opinions and some of your experiences.

  • The first workshop will take place : 5 April between 9.30am and 2pm
  • The second workshop will take place 10 May between 9.30am and 1.30pm

Both workshops will take place in The Board Room, Health Technology Hub, University of West Of England, Frenchay, BS34 8QZ. Lunch and refreshments will be provided

More information can be found at https://www.nbt.nhs.uk/research-events or please contact Angelo Micciche on 0117 4149334 or Angelo.Micciche@nbt.nhs.uk

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Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research

An international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research have released a consensus statement in the International Journal of Population Data Science. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution.

Their key premise is that the public should not be characterised as a problem to be overcome but a key part of the solution to establish socially beneficial data-intensive health research for all.

Click here to find out more.

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Learning for Involvement website

NIHR Involve has launched a single searchable site with details of training opportunities and learning resources. This website is dedicated to learning and development for public involvement in health and social care research: what’s it all about and how to do it well. It brings public involvement information and resources (such as guidance, websites, videos, articles and blogs) and training together in one place. http://learningforinvolvement.org.uk/

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Funding opportunity to strengthen links with Public Contributors

The West of England AHSN is inviting organisations from the voluntary, community and social enterprise (VCSE) sector to submit proposals for funding between £500 and £10,000 to strengthen links with public contributors and encourage innovation using hyvr– the online social media platform for healthcare.

hyvr has been developed by the West of England AHSN as a platform where users can discuss innovations and health related issues with like-minded people in groups called ‘hives’. Ongoing dialogue on hyvr between the public and other collaborators will seek to accelerate the development of new and relevant healthcare initiatives including products, gadgets and new ways of working, as well as a forum for any health or care topic discussion.

Successful proposals will achieve four objectives:

  1. Benefit the applying organisation(s) in supporting a strategic aim(s).
  2. Provide sufficient numbers of users on the hyvr platform to determine its efficacy as a networking tool.
  3. Strengthen links with public contributors putting them at the heart of the innovation process.
  4. Support innovators to engage directly with public contributors.

Applications are open until 5pm on 21st February 2019. Full details including application guidance and schedule are available to download here.

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More Patient and Public Involvement (PPI) Advisers for the South West Research Design Service

Welcome to Jo Welsman and Helen Burchmore, two recent appointments to the South West Research Design Service (RDS). Jo is based in the Bristol office and Helen in Exeter, and they cover the entire South West RDS region. Both Helen and Jo bring extensive PPI experience to their new roles having worked across many different organisations and with very diverse patient and public groups. They have led and supported PPI in research covering primary care to basic biosciences and everything in between. They can provide advice on where and how to involve patients, help you identify patient and public networks and groups to collaborate with, and access funding to enable collaborative PPI activities at the prefunding stage.

You can contact Jo or Helen at any stage of your proposal development, but they emphasise they can support you best if you contact them as early as possible in your application process. “We are also keen to hear from members of the public, or patient groups or networks who are interested in contributing to research design so please get in touch.”

j.r.welsman2@exeter.ac.uk
H.Burchmore@exeter.ac.uk

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Reporting Involvement

The National Institute for Health Research (NIHR) Journals Library has adopted a new set of guidelines providing researchers with support and advice to improve reporting of patient and public involvement in trials. The Guidance for Reporting Involvement of Patients and the Public (GRIPP2) checklist is an evidence-based, robust and practical guide to support and encourage better reporting of how the public has been involved in studies.

Click for more info

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‘International Perspectives on Evaluation of PPI in Research’ Abstract call now open!

Abstract call now open for ‘International Perspectives on Evaluation of PPI in Research’, a conference will provide an international platform to critically explore and reflect on the issue of evaluation of patient and public involvement in research. The conference will be held in Newcastle upon Tyne on Thursday 15th and Friday 16th November, 2018.

We are now accepting abstracts for oral, poster and workshop presentations for this conference.

Closing date for submissions is Tuesday 31st July.

Reviewer decisions will be available mid-August.

The conference provides an exciting opportunity for shared learning and for showcasing your patient and public involvement (PPI) in research to an international audience.

Rather than pre-set themes we will shape the thematic structure of our parallel sessions and poster presentations around the topics covered within submitted abstracts.

Submissions are therefore invited that reflect a range of PPI experience, academic and philosophical interests, and diversity in the practice and evaluation of PPI in research.

Abstracts are invited from both the ‘professional’ and PPI communities.

Abstracts led by professionals should ideally include PPI co-authors.

Find out more about our abstract call here. Submit your abstract by email here.

The conference website is now live with further information about the 2-day programme, our fantastic line up of speakers, the conference venue and registration.

A small number of bursaries will be available to support attendance of PPI delegates, details will be provided when registration opens in July.

Follow us on Twitter for live updates

@intppieval #intppieval18

This conference is jointly chaired and delivered by PPI contributors.

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Submit an ‘Innovation in PPI’ Soapbox idea

Applications are now open for proposals of ideas that suggest novel ways to approach PPI in research. Ideas must be new and untested. We are particularly interested in ideas that demonstrate ‘out-of-the-box’ thinking. This includes ideas that may be ‘off the wall’, ‘blue sky’, or even not fully formed – as these may be a catalyst for more interactive and innovative thinking and discussion.

If your proposal is accepted you will be offered a 5 minute slot on our ‘Innovation in PPI Soapbox’ to talk about your idea. Please note: these presentations will NOT include slides or a poster – just the presenter and their notes (if required).

Ideas might address current practice, for example training; current issues, like diversity; or barriers to involvement, such as remuneration.

They key criteria are that your idea will be novel and innovative!

We are particularly interested in receiving Soapbox submissions from PPI partners

The word limit for idea summaries is 300 words, excluding the idea title and the presenter’s details.

You will find the Soapbox submission template here. Send your completed Soapbox form to evalppi.conf@ncl.ac.uk by Tuesday 31st July 2018. Lead authors on submitted contributions will be notified about reviewer decisions by mid-August.

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Digital Involvement

The role and potential of patient and public involvement (PPI) in a digital age is the subject of a new guide published by the AHSN Network.

Written by Hildegard Dumper, PPI Manager at the West of England AHSN, the guide explores the different ways AHSNs around the country are involving members of the public in healthcare innovation and the development of new technologies.

To find out more and download a copy of the guide click here

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Patient and Public Involvement and Engagement annual reports, National Institute for Health Research

Every year, over 100 National Institute for Health Research (NIHR) funded Centres, Facilities, Units, Schools and others provide an annual progress report to the NIHR. These reports are a source of valuable information that allows the NIHR to review performance, enable decision making on future funding requirements, answer Parliamentary Questions, prepare briefings for Ministers, and respond to other requests for information.

There is a patient and public involvement and engagement (PPIE) section in annual reports that asks for a brief summary of progress to date in implementing PPIE strategies.

Over the last three years, NIHR have extracted and compiled the PPIE sections of annual reports and made them publicly available. The main aim in doing this is to support and promote the sharing of knowledge, learning and good practice across the NIHR and beyond.

Find out more here

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NICE launch bursary scheme for the 2018 NICE Annual Conference

NICE have announced the launch of the bursary scheme for the 2018 NICE Annual Conference which is taking place at the Hilton Hotel, Deansgate, Manchester.

Improving Heath, Improving Lives brings together the latest developments in clinical improvement, health technologies and patient-centred quality care. Core themes of the 2018 event are:

  • Life sciences – value and vision
  • Digital health
  • Patient-centred quality care

From streamed sessions focusing on the detail of new NICE guidelines, to plenary debates on person-centred care and evidence-based practice, the conversation will no doubt return time and again to the key questions: What does excellent care look like? And how much does it cost? View the 2018 NICE Annual Conference agenda for full programme of events.

The bursary offer: This year’s bursary package consists of a full day delegate pass to the conference worth £149 plus VAT. The bursary scheme is open to national patient, carer, service user and voluntary organisations, local and regional Healthwatches, and can be applied for by completing and returning an application form.

Bursary packages are limited and interest is expected to be high so don’t delay in returning your application. Further details of the bursary scheme and the application form are also available on NICE website bursary page.

The closing date for submitted applications is 5pm, Friday 26 January 2018. Applications will be considered for eligibility by the NICE Public Involvement Programme. Applications which meet the eligibility criteria will be selected for a bursary at random.

Because of the limited number of bursary packages available, priority may be given to those organisations who have not previously received a NICE conference bursary.

Successful applicants will be notified as soon as possible following the closing date. Unsuccessful applicants will be entitled to book delegate passes at a discounted rate.

How to apply: Once you have read the terms and conditions, complete and return your application form electronically to bursary2018@nice.org.uk or by post to NICE 2018 – Conference Bursary Scheme, c/o Mrs Sally Taylor, Public Involvement Programme, NICE, Level 1, City Tower, Piccadilly Plaza, Manchester, M1 4BT.

Please note that applications received after 5pm, Friday 26 January 2018 will NOT be considered.

BursarySchemeTermsandConditions

bursary-scheme-application-form 2018

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INVOLVE at 21: Celebrate the progress of public involvement in research

Members of our team attended the recent conference INVOLVE at 21: Celebrate the progress of public involvement in research and consider the opportunities ahead. Here are the posters and video we produced and presented at the Conference:

A Gibson Poster INVOLVE Conference 2017 People in Health West of England: A regional network for promoting public involvement

M Kok Poster INVOLVE Conference 2017 Developing a toolkit for patient and public involvement in antimicrobial medicines development research: breaking new ground

R Davies Poster INVOLVE Conference 2017 Discovering the role of public co-applicant

N Hopewell-Kelly Poster INVOLVE Conference 2017 Making it meaningful; overcoming the challenges in involving vulnerable people

M Bell Video INVOLVE Conference 2017 Making it meaningful – Public involvement in research

S Tweddell Workshop slides INVOLVE Conference 2017 This was for a workshop on public involvement with the charity and voluntary sector, drawing on the West of England Academic Health Science Networks Diabetes Digital Coach as a case study

J Jackson Poster INVOLVE Conference 2017 Preventing post-operative urinary retention: an example of researcher-patient co-production

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New publication: Does funded research reflect the priorities of people living with type 1 diabetes?

Andy Gibson, Associate Professor in patient and public involvement at the University of the West of England is a co-author on a new publication: ‘Does funded research reflect the priorities of people living with type 1 diabetes? A secondary analysis of research questions’ (Authors Kate Boddy, Katherine Cowan, Andy Gibson, Nicky Britten).

This study explored the divergence and convergence between funded research about type 1 diabetes and the research agenda of people living with the condition and their carers.

Find out more here

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Patients share their experiences of taking part in research at North Bristol NHS Trust

Patients of North Bristol NHS Trust share their experiences of taking part in research in a new magazine. Sharon Nolan, Communications & Patient & Public Involvement in Research Manager at North Bristol NHS Trust says “We consider ourselves to be very lucky at Southmead hospital, research is what we do every day across all areas of the Trust, and if you are a patient here, then you will more than likely be asked if you would like to take part in a research study as part of your care.”

You can read patient stories and find out more about how to get involved yourself by downloading the Take Part Be Involved in Research magazine.

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New films show the benefit of public involvement

INVOLVE reports members of the public have worked alongside Cardiff University staff to produce two short films that highlight the benefit of public involvement in research.

One film, ‘Why get involved in Research?’ is aimed at members of the public and the second, ‘Public Involvement in Research’ is aimed at researchers.

Watch the films below or click here to find out more.

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Healthcare Change Makers link is live

Bristol Community Health are excited to report the link for the Healthcare Change Makers is now live.

Could you be one of Bristol’s first Healthcare Change Makers? Are you enthusiastic about the way that we, and our hospitals deliver services now and how we might adapt to meet future needs? Together with North Bristol Trust and University Hospitals Bristol, Bristol Community Health is looking to equip local residents with the skills, knowledge and confidence to work alongside us to improve our services

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PHWE has new public contributor co-chair

We are delighted to be able to announce that Martin Gregg, has agreed to take on the role of public contributor co-chair for People in Health West of England. Martin will be sharing this role with Julie Hapeshi, our professional co-chair. Martin is a lay member of South Gloucestershire Clinical Commissioning Group (CCG) with specific responsibility for Patient and Public Involvement and Equalities. We are all looking forward to working with Martin in his new role as co-chair.

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Job Opportunity with Patient and Community Leadership Programme for Bristol – Project Coordinator Freelance

Bristol Community Health, University Hospitals Bristol NHS Foundation Trust and North Bristol NHS Trust are working in collaboration with NHS England and People in Health West of England to deliver an innovative Patient and Community Leadership programme in Bristol. The programme will be co-designed and co-delivered by Mark Doughty, Director at the Centre for Patient Leadership and Kings Fund Associate. The outcome of the programme is to develop a group of patient and community leaders who will use their confidence, knowledge, skills and experiences to work collaboratively with health care leaders as partners for positive change and improvement.

We are seeking a Project Co-ordinator on a freelance, fixed-term basis to actively support the planning and delivery of the programme. We are seeking someone who is inspired by people and communities, ensuring their voice changes health services for the better. Working closely with a small steering group of staff from the partner organisations, your exciting role will ensure energised participation in the programme from across the city and you will act as the central point of contact for programme participants and operational elements of the programme.

We are looking for a highly organised and dynamic person who will deliver on a varied workload; to make positive contact with and provide ongoing support to programme participants. Working with the programme partners and other stakeholders to encourage collaboration to enable a successful programme to be delivered; engaging new and diverse communities as participants in what we see as an innovative approach to engagement in the local health service.

Fee of £5,250 for 30 days between August and December 2016 (majority of time in August and September)

If you believe that local citizens can shape the future of the health service in the area, we’d love to hear from you.

For further information: Please see Role Profile – PCL Project Coordinator

How to apply: Please send a CV and covering letter that explains why you are the right person for the role (in no more than 1 side of A4) to matthew.areskog@briscomhealth.nhs.uk

Closing date: Midday on Sunday 31st July.

Appointment will be made after a process of shortlisting and interview. Interviews will be held week commencing 8 August 2016. Please note that we will not be able to offer feedback on applications to candidates who have not been shortlisted.

If you would like an informal chat about the role, please contact either:

Tony Watkin, Patient Experience Lead, University Hospitals Bristol NHS Foundation Trust – 0117 342 3729, or
Gill Brook, Head of Patient Experience, North Bristol Trust – 0117 414 9064

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Secondment Opportunity with West of England Academic Health Science Network – Enterprise Engagement Co-ordinator

An exciting opportunity has opened at the West of England AHSN to join the Enterprise team on a 12 month secondment to cover maternity leave. The role is for an Enterprise Engagement Co-ordinator, who will be the link person between businesses, the public, healthcare and voluntary sectors and we would like the successful applicant to start in July.

The post-holder will also be responsible for managing the delivery of the Design Together, Live Better programme, one of the main projects being delivered by the Enterprise team. It is a citizen-led design project, aimed at capturing ideas for new innovative products from a citizen’s perspective and connecting citizens and innovators in the design of new products and beta-testing new developments.. Further information about the project can be found on www.designtogetherlivebetter.org

Please see the job description and person specification below. The West of England AHSN has its main base in the centre of Bristol.

Closing date for application is 9 am Monday 4th July 2016.

We may close this call for applications earlier if we receive a lot of interest.

Please apply by sending your CV and covering letter to Elizabeth.dymond@weahsn.net

For informal conversations about this role, please contact Nada Khalil 0117 984 1582 nada.khalil@weahsn.net

All applicants should have the support of your organisation before they apply.

Job Description & Person Specification West of England AHSN Enterprise Engagement Coordinator

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PHWE has new professional co-chair

We are delighted to be able to announce that Julie Hapeshi, has agreed to take on the role of co-chair for People in Health West of England. Julie will be sharing this role with Cathy Rice, our public contributor co-chair. Julie brings to the role a wealth of experience and insights. She is Deputy Director of the Research Design Service (RDS) and of Research & Development at Gloucester Hospitals Trust and a founding member of PHWE. In addition, her RDS role links Julie to the new INVOLVE team. We are all looking forward to working with Julie in her new role as co-chair.

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Join one of the most exciting Patient & Public Involvement initiatives in the West of England – Professional Co-chair

People in Health West of England (PHWE) is a unique initiative promoting innovative and effective public involvement in research and evidence-based service improvement. From its inception People in Health West of England has been co-chaired by a public contributor Cathy Rice and a professional Nicky Williams. Nicky who was Deputy Director of Research and Innovation at North Bristol Trust has now moved on to take up the role of National Director for Support and Delivery of Health and Social Care Research in Wales. We would therefore like to recruit another professional to play the crucial leadership role Nicky has played around public involvement. As well as meeting our needs for a professional co-chair this is an exciting professional development opportunity for the right person.

More information: PHWE Strategy Group – Professional Co-chair Invitation and Role Description If after reading the invitation and role description, you would like to find out more contact David Evans, Academic Lead for the project David9.Evans@uwe.ac.uk or telephone 0117 328 8750

Closing date: Expressions of interest outlining what you would bring to the role along with a brief CV (one page maximum) should be sent by Monday 2nd May 2016 to Kim.Thomas@nihr.ac.uk

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Patient Involvement Film

The Support and Treatment After joint Replacement (STAR) research project team shows how patient involvement (not only participation) has been embedded into a research project and how it made a difference.

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Nicky Williams, co-chair of PHWE

Hildegard Dumper, PPI Manager:

I was reminded how the development of a truly patient and people led health service takes time at the People in Health West of England Awayday in November. During an exercise reflecting on our achievements over the past year, we realised that the idea for a joint PPI initiative was first mooted in 2008, seven years ago. This evolved first into People & Research West of England, before being re-launched as People in Health West of England (PHWE) in 2014. Throughout this time the network has been chaired by Nicky Williams, Deputy Director of Research, North Bristol NHS Trust. Nicky is now leaving us to take on the post of National Director of Support & Delivery for Health And Social Care Research for Wales.

Nicky told me: “It has been a pleasure to co-chair the strategy group with Cathy Rice over the last few years and I look forward to hearing all about the work of PHWE in the future. I’m really proud of how PHWE has grown from the little seed of an idea that we first discussed in 2008 – a real credit to the commitment of the public contributors and staff involved.”

Another event a week earlier also reminded me that the development of good public involvement takes time.

At a panel discussion on cities, health, people and leadership at the Festival of the Future City last week, Professor David Evans pointed out that INVOLVE is now 20 years old. INVOLVE is funded by the National Institute for Health Research (NIHR) and was established 20 years ago in 1996 to support public involvement in the NHS, public health and social care research. It is now well established as the key body to drive forward and support good practice in public involvement in research, providing the benchmark for other areas of health and social care. In the context of an NHS that has gone through several major structural changes in the past few years, this consistency is a major achievement.

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Public Involvement summaries available

Progress reports for many initiatives within the National Institute for Health Research (NIHR) include a summary of progress in implementing patient and public involvement and engagement (PPIE). This year, those summaries have been extracted and made publicly available. The Central Commissioning Facility (CCF) of the NIHR welcomes feedback on these reports. For example, it would be helpful to them to know who is reading them, whether readers find them informative and useful, and how they could be improved. Please email your comments or contact the CCF patient and public involvement (PPI) team.

If you are a member of the public and would prefer a paper copy, please contact the CCF PPI team.

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INVOLVE: new contract

The University of Southampton has been awarded a four-year contract worth £3.2 million to deliver INVOLVE, the National Institute for Health Research’s Centre for Patient and Public Involvement, Participation and Engagement. This contract takes account of the Going the Extra Mile report. Through a new partnership with the Research Design Service (RDS), INVOLVE will provide leadership in public involvement in research at national, local and regional levels. Find out more

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Public Engagement appointment

The Elizabeth Blackwell Institute (EBI) welcomes Georgia Bladon, their new Public Engagement Associate. Her role includes managing the EBI public engagement activities, including its Public Advisory Group, and providing support for researchers across Bristol University in developing public engagement as part of their research or grant applications.

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Public Involvement Benefits Advice

INVOLVE has sent a reminder that, if you work for/with the National Institute for Health Research (NIHR), it’s important that you offer access to the free and confidential Benefits Advice Service to all those undertaking paid involvement with your organisation. Expert guidance from the Benefits Advice Service can support anyone involved with any NIHR organisation or NIHR-funded study (or subscribing partner organisation).

Members of the public who are in receipt of welfare benefits and are offered payment for involvement need to consider how the payment might affect their benefits. This is a complex topic on which the Benefits Advice Service has expert knowledge and it can offer valuable advice to those who:

  • are considering becoming involved
  • are considering whether to accept a payment
  • have already received payment but are concerned about declaring it to benefits agencies.

The advice is free, confidential, informed by the latest regulations and personalised (the advice is specific to the individual’s circumstances). Please ask anyone wishing to access the service to email benefits@invo.org.uk or to phone on: 02380 651088.

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Public Involvement Conference Feedback

We are delighted with all the positive feedback from our annual conference Progress and Practice in Involvement 2015, held on 3rd June. Nearly 100 people attended, a quarter of whom were members of the public. Most people who completed an evaluation form rated the day overall as good or excellent. The People in Health West of England team would like to say a big ‘thank you’ to everyone who helped us make this a successful day by running sessions, coming along and helping us organise the event.

Rosie Davies, Research Fellow (Patient & Public Involvement)

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Patient & Public Inolvement (PPI) Appointment

Our public involvement facilitator Mike Bell started work with the People in Health West of England Patient & Public Involvement (PPI) Team last week. This post is funded by Bristol Health Partners to support facilitation of involvement in Health Integration Teams. Mike’s most recent experiences include health complaints advocacy and working with disabled students to increase the numbers applying to higher education. He will initially be concentrating on building up our work with children and young people.

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Patient & Public Involvement (PPI) Appointment

The University of the West of England has appointed Andy Gibson as Associate Professor PPI to start at the end of April 2015. Andy has led the innovative development of patient and public involvement (PPI) in the Collaboration for Leadership in Applied Health Research and Care (CLAHRC) South West Peninsula (PenCLAHRC) over the last five years. During this time he has spearheaded the involvement of patients and the wider public in generating ideas for research projects to be taken forward by PenCLAHRC. Andy will work closely with the West of England Joint PPI team and we are looking forward to benefiting from his insights and experiences.

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