Women who have had a smear test – Researchers want to know your thoughts on having genetic testing

The Idea: Researchers want to know your thoughts on having genetic testing (DNA testing) to look genes that can put you at risk of cancer This test can be done by taking a mouth swab or by doing a blood test. We would test for genes including BRCA and Lynch syndrome. These genes can be passed onto your children and affect other members of your family. If we find you carry these genes other members of the family could be tested.

The question: They want to hear about your experiences around colposcopy and your views on how acceptable genetic testing might be would be for you.

When: 20th of January 2021

How:  This will be done over an online platform like Zoom. We will lay out the idea and then explore your views on the matter. It should take no more than 2 hours.

Who: They ideally want around 8-10 women over the age of 18 years who have experience of using colposcopy services or who have engaged in the national cervical screening program/smear test

Why: This will help them develop a research idea that really does have the potential to save numerous lives. They will also reimburse you £25 for your time and help. Furthermore, if you were interested, there would be opportunities in the future to continue to shape this research.

If interested or for more information please contact nr3546@bristol.ac.uk.
For more information about Dr Neil Ryan please go to: http://www.bristol.ac.uk/clinical-sciences/people/neil-ryan/overview.html

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Women with lived experience of ovarian cancer

The Idea: Researchers want to know your thoughts on having genetic testing (DNA testing) to look genes that can put you at risk of cancer This test can be down by taking a mouth swab or by doing a blood test. We would test for genes including BRCA and Lynch syndrome. These genes can be passed onto your children and affect other members of your family. If we find you carry these genes other members of the family could be tested.

The question: They want to hear your views on how acceptable this would be for you and hear about your experiences.

When: 20th of January 2021

How: This will be done over an online platform like Zoom. We will lay out the idea and then explore your views on the matter. It should take no more than 2 hours.

Who: They ideally want around 8-10 women over the age of 18 years who have a lived experience of ovarian cancer.

Why: This will help them develop a research idea that really does have the potential to save numerous lives. They will also reimburse you £25 for your time and help. Furthermore, if you were interested, there would be opportunities in the future to continue to shape this research.

If interested or for more information please contact nr3546@bristol.ac.uk.
For more information about Dr Neil Ryan please go to: http://www.bristol.ac.uk/clinical-sciences/people/neil-ryan/overview.html

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Are you aged 19+ and use or have used antidepressant medication?

Involvement Opportunity Title:  The effects of antidepressant withdrawal on mood and neurocognitive function

For: Patients with experience of taking antidepressants who have discontinued at least one antidepressant medication type in the past (e.g., Prozac, Citalopram) and who may or may not be taking antidepressant medication currently.

What:  A PhD student is preparing to conduct an online study investigating the effects of withdrawing from antidepressant medication on mood and emotion/social processing. I am looking for participants who are interested in sharing their experiences of antidepressant medication use and in particular, answering questions around withdrawal. I am also hoping to get feedback on my research questions, study design and study materials, with the aim of making the research more accessible and reducing participant burden.

When: If interested please email to discuss arranging an online session which could last up to an hour. Sessions will be arranged from week beginning 18 Jan 2021 until we have enough respondents.

Where:  Online (MS Teams or Zoom call)
Expenses: Volunteer basis
Closing Date: 30 Jan 2021 (first instance)

For more Information: 
please email Raqeeb Mahmood, rm2377@bath.ac.uk or go to https://www.swdtp.ac.uk/profile/raqeeb-mahmood/

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Help shape HIV and sexual health services for people of African and Caribbean heritage in Bristol

Common Ambition Bristol is a major new project with people of African and Caribbean heritage working in partnership with health care professionals to increase HIV testing and awareness and reduce HIV stigma in Bristol. For this project to be a success, the project team need people of African & Caribbean heritage to work together with them to help develop news ways to tackle HIV. There will be various paid and volunteer opportunities to be involved in the project. More information here

The project is being led by Brigstowe (Bristol-based charity for people living with HIV), in partnership with African Voices Forum (Bristol-based network of African and African-Caribbean community organisations). They will be working in collaboration with African and Caribbean communities, health care professionals from Unity Sexual Health and public health teams from Bristol City Council to introduce new ways to increase the uptake of HIV testing and broader sexual health services. Researchers from the University of Bristol will work in collaboration with community members to evaluate the project.

Eligibility: A person of African and Caribbean heritage living in Bristol or the surrounding area.

When: The project team are holding an online launch on Tuesday 2nd February from 4.30pm to 5.30pm – where you can find out more about the project and how you can help shape it – please register here. If you are interested in finding out more about this project and are unable to attend the launch event, please email info@brigstowe.org

Role: There are six paid roles to be part of the Project Delivery Group which will meet monthly and lead the project. The team will also be looking for four people to help with the evaluation of the project, also paid roles.

Diversity: As this project directly relates to the lived experience of being a person of African and Caribbean heritage, the project team are looking for individuals from these communities.

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Have you called NHS 111 worried about COVID symptoms?

Have you called NHS 111 worried about COVID symptoms?

The Universities of Bristol, Oxford and Southampton are looking for six members of the public to join their advisory panel.

The role is open to any patients, parents or carers with experience of calling NHS 111 between March and June this year for themselves, or on behalf of another individual, with symptoms that they were worried could be COVID-19.

There team of researchers from the Universities of Oxford, Bristol and Southampton, are planning to listen back to recordings of NHS 111 phone calls. Then they will identify and describe common caller concerns, and how call-takers manage these concerns. They will also explore how call-takers make sure callers know when and how to seek further medical help.

The role of lay advisor is flexible but could include:
• Helping them choose the most important things to include in training for call takers
• Helping to plan the best ways to communicate and share their findings with the wider public.

You could take part in a group video conference, or talk to our researchers privately by phone, whichever you prefer.
You will receive online shopping vouchers to recognise your contribution.

Please get in touch by 15th December
Their website is https://calling111aboutcovid.wordpress.com/
Or email the study team via open-project@bristol.ac.uk

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