Lay involvement for Exceptional Funding Review Panel

For: All members of the public who live in Bristol, North Somerset or South Gloucestershire

Closing date: 25 March 2019

What: To become a member of the Exceptional Funding Review Panel and and contribute in decisions as to who receives funding for services or treatment that is not normally funded by the NHS. It entails attending monthly meetings and reading papers in preparation.

When: The meeting will take place on the first Tuesday of each month from 12:00 – 14:00. This is an ongoing meeting and ideally commitment from public contributors would be for around 12 months at least, but will be reviewed as needed.

Where: South Plaza, Marlborough Street, BS1 3NX

Expenses: Out of pocket expenses will be reimbursed.

For more information: Read the role description here and use this survey link to tell us, using no more than 400 words, how you meet the role description detailed above by 25 March and we will let you know how we can involve you.

If you cannot access the survey, please tell us in no more than 400 words how you meet the criteria above by emailing bnssg.contactus@nhs.net with the heading EFR Panel Lay member or write to Niall Mitchell, Exceptional Funding Senior Manager, Bristol, North Somerset and South Gloucestershire CCG, South Plaza, Marlborough Street, Bristol, BS1 3NX. However, in the meantime, if you have any questions, please don’t hesitate to get in touch using the email detailed above.

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Healthier Together Citizens’ Panel Steering Group

For: People living in North Somerset and South Gloucestershire

What: Healthier Together has set up a Citizens’ Panel of 1,000 people to help make “quicker, more effective decisions and deliver better health outcomes.” They seek two people to shape the strategic direction of the Citizens’ Panel by being a member of the Steering Group.

When: The Steering Group will meet every three months for an hour or two, and we are looking for a commitment to the group for one or two years.

Where: The group will meet in central Bristol

Money?: Expenses will be paid

Closing Date: 25 March 2019

More Info: Find out more here or contact Louise Fowler on 07917 456874 or email louise.fowler3@nhs.net

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Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research

An international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research have released a consensus statement in the International Journal of Population Data Science. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution.

Their key premise is that the public should not be characterised as a problem to be overcome but a key part of the solution to establish socially beneficial data-intensive health research for all.

Click here to find out more.

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Learning for Involvement website

NIHR Involve has launched a single searchable site with details of training opportunities and learning resources. This website is dedicated to learning and development for public involvement in health and social care research: what’s it all about and how to do it well. It brings public involvement information and resources (such as guidance, websites, videos, articles and blogs) and training together in one place. http://learningforinvolvement.org.uk/

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Funding opportunity to strengthen links with Public Contributors

The West of England AHSN is inviting organisations from the voluntary, community and social enterprise (VCSE) sector to submit proposals for funding between £500 and £10,000 to strengthen links with public contributors and encourage innovation using hyvr– the online social media platform for healthcare.

hyvr has been developed by the West of England AHSN as a platform where users can discuss innovations and health related issues with like-minded people in groups called ‘hives’. Ongoing dialogue on hyvr between the public and other collaborators will seek to accelerate the development of new and relevant healthcare initiatives including products, gadgets and new ways of working, as well as a forum for any health or care topic discussion.

Successful proposals will achieve four objectives:

  1. Benefit the applying organisation(s) in supporting a strategic aim(s).
  2. Provide sufficient numbers of users on the hyvr platform to determine its efficacy as a networking tool.
  3. Strengthen links with public contributors putting them at the heart of the innovation process.
  4. Support innovators to engage directly with public contributors.

Applications are open until 5pm on 21st February 2019. Full details including application guidance and schedule are available to download here.

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More Patient and Public Involvement (PPI) Advisers for the South West Research Design Service

Welcome to Jo Welsman and Helen Burchmore, two recent appointments to the South West Research Design Service (RDS). Jo is based in the Bristol office and Helen in Exeter, and they cover the entire South West RDS region. Both Helen and Jo bring extensive PPI experience to their new roles having worked across many different organisations and with very diverse patient and public groups. They have led and supported PPI in research covering primary care to basic biosciences and everything in between. They can provide advice on where and how to involve patients, help you identify patient and public networks and groups to collaborate with, and access funding to enable collaborative PPI activities at the prefunding stage.

You can contact Jo or Helen at any stage of your proposal development, but they emphasise they can support you best if you contact them as early as possible in your application process. “We are also keen to hear from members of the public, or patient groups or networks who are interested in contributing to research design so please get in touch.”

j.r.welsman2@exeter.ac.uk
H.Burchmore@exeter.ac.uk

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Reporting Involvement

The National Institute for Health Research (NIHR) Journals Library has adopted a new set of guidelines providing researchers with support and advice to improve reporting of patient and public involvement in trials. The Guidance for Reporting Involvement of Patients and the Public (GRIPP2) checklist is an evidence-based, robust and practical guide to support and encourage better reporting of how the public has been involved in studies.

Click for more info

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