Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research

An international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research have released a consensus statement in the International Journal of Population Data Science. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution.

Their key premise is that the public should not be characterised as a problem to be overcome but a key part of the solution to establish socially beneficial data-intensive health research for all.

Click here to find out more.

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Learning for Involvement website

NIHR Involve has launched a single searchable site with details of training opportunities and learning resources. This website is dedicated to learning and development for public involvement in health and social care research: what’s it all about and how to do it well. It brings public involvement information and resources (such as guidance, websites, videos, articles and blogs) and training together in one place.

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Funding opportunity to strengthen links with Public Contributors

The West of England AHSN is inviting organisations from the voluntary, community and social enterprise (VCSE) sector to submit proposals for funding between £500 and £10,000 to strengthen links with public contributors and encourage innovation using hyvr– the online social media platform for healthcare.

hyvr has been developed by the West of England AHSN as a platform where users can discuss innovations and health related issues with like-minded people in groups called ‘hives’. Ongoing dialogue on hyvr between the public and other collaborators will seek to accelerate the development of new and relevant healthcare initiatives including products, gadgets and new ways of working, as well as a forum for any health or care topic discussion.

Successful proposals will achieve four objectives:

  1. Benefit the applying organisation(s) in supporting a strategic aim(s).
  2. Provide sufficient numbers of users on the hyvr platform to determine its efficacy as a networking tool.
  3. Strengthen links with public contributors putting them at the heart of the innovation process.
  4. Support innovators to engage directly with public contributors.

Applications are open until 5pm on 21st February 2019. Full details including application guidance and schedule are available to download here.

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More Patient and Public Involvement (PPI) Advisers for the South West Research Design Service

Welcome to Jo Welsman and Helen Burchmore, two recent appointments to the South West Research Design Service (RDS). Jo is based in the Bristol office and Helen in Exeter, and they cover the entire South West RDS region. Both Helen and Jo bring extensive PPI experience to their new roles having worked across many different organisations and with very diverse patient and public groups. They have led and supported PPI in research covering primary care to basic biosciences and everything in between. They can provide advice on where and how to involve patients, help you identify patient and public networks and groups to collaborate with, and access funding to enable collaborative PPI activities at the prefunding stage.

You can contact Jo or Helen at any stage of your proposal development, but they emphasise they can support you best if you contact them as early as possible in your application process. “We are also keen to hear from members of the public, or patient groups or networks who are interested in contributing to research design so please get in touch.”

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Reporting Involvement

The National Institute for Health Research (NIHR) Journals Library has adopted a new set of guidelines providing researchers with support and advice to improve reporting of patient and public involvement in trials. The Guidance for Reporting Involvement of Patients and the Public (GRIPP2) checklist is an evidence-based, robust and practical guide to support and encourage better reporting of how the public has been involved in studies.

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‘International Perspectives on Evaluation of PPI in Research’ Abstract call now open!

Abstract call now open for ‘International Perspectives on Evaluation of PPI in Research’, a conference will provide an international platform to critically explore and reflect on the issue of evaluation of patient and public involvement in research. The conference will be held in Newcastle upon Tyne on Thursday 15th and Friday 16th November, 2018.

We are now accepting abstracts for oral, poster and workshop presentations for this conference.

Closing date for submissions is Tuesday 31st July.

Reviewer decisions will be available mid-August.

The conference provides an exciting opportunity for shared learning and for showcasing your patient and public involvement (PPI) in research to an international audience.

Rather than pre-set themes we will shape the thematic structure of our parallel sessions and poster presentations around the topics covered within submitted abstracts.

Submissions are therefore invited that reflect a range of PPI experience, academic and philosophical interests, and diversity in the practice and evaluation of PPI in research.

Abstracts are invited from both the ‘professional’ and PPI communities.

Abstracts led by professionals should ideally include PPI co-authors.

Find out more about our abstract call here. Submit your abstract by email here.

The conference website is now live with further information about the 2-day programme, our fantastic line up of speakers, the conference venue and registration.

A small number of bursaries will be available to support attendance of PPI delegates, details will be provided when registration opens in July.

Follow us on Twitter for live updates

@intppieval #intppieval18

This conference is jointly chaired and delivered by PPI contributors.

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Submit an ‘Innovation in PPI’ Soapbox idea

Applications are now open for proposals of ideas that suggest novel ways to approach PPI in research. Ideas must be new and untested. We are particularly interested in ideas that demonstrate ‘out-of-the-box’ thinking. This includes ideas that may be ‘off the wall’, ‘blue sky’, or even not fully formed – as these may be a catalyst for more interactive and innovative thinking and discussion.

If your proposal is accepted you will be offered a 5 minute slot on our ‘Innovation in PPI Soapbox’ to talk about your idea. Please note: these presentations will NOT include slides or a poster – just the presenter and their notes (if required).

Ideas might address current practice, for example training; current issues, like diversity; or barriers to involvement, such as remuneration.

They key criteria are that your idea will be novel and innovative!

We are particularly interested in receiving Soapbox submissions from PPI partners

The word limit for idea summaries is 300 words, excluding the idea title and the presenter’s details.

You will find the Soapbox submission template here. Send your completed Soapbox form to by Tuesday 31st July 2018. Lead authors on submitted contributions will be notified about reviewer decisions by mid-August.

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