Involvement Opportunity – How people living with dementia and their carers manage reminders for calendar events

For: People living with dementia and their carers.

What: An interview with Nina Evans in their own homes together about how they manage routines and reminders, and give their views on the subject of calendars and diaries.

When: To be arranged. The full visit will not take longer than 90 minutes.

Where: The interview with Nina Evans will take place at home.

A £25 voucher to acknowledge participation will be given to each pair of participants.

Closing date and more information: Nina Evans will finish recruiting for personal interviews at the end of May.

More information, Nina Evans (ninaevans@designability.org.uk), Tel: 01225 824 103

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Involvement Opportunity – Sensory project to evaluate a new cushion for people living with later stage dementia

For: People living with dementia and their carers.

What: Trial a new cushion for people living with later stage dementia and requires the carer to facilitate and report on the experience of the cushion.

When: To be arranged.

Where: At a place convenient for the carer and person living with dementia, this could be at home or a local centre or at Designability, Bath.

Although there is no payment, participants can keep the cushion.

Closing date and more information: Nina Evans will finish recruiting at the end of April, or when all available cushions are allocated if sooner.

Contact Nina Evans who can then tell you more about the trial and answer any questions you have. If you decide you would like to find out more Nina Evans will arrange to meet with you and show you the cushions so you can decide if it is suitable for your situation, she will do a short interview and explain how best you can record your evaluation experience using materials Designability will provide.

More information, Nina Evans (ninaevans@designability.org.uk), Tel: 01225 824 103

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Involvement Opportunity – Effects of Post Traumatic Stress in people with a psychotic disorder

For: People who are 18+ with a history of a psychotic disorder and who are current Bristol Mental Health service users, or have been in the past 18 months.

What: A key development in understanding what causes schizophrenia is the increasing recognition that extremely stressful or traumatic experiences may play an important role in the development of hallucinations and delusions in some individuals. A substantial majority of individuals with schizophrenia report a history of a traumatic experience, particularly interpersonal violence, during their lifetime. Furthermore, whilst studies suggest that many individuals with schizophrenia also meet criteria for post-traumatic stress disorder (PTSD) on screening, this is often not recognised in routine clinical settings. For some individuals it is therefore plausible that the hallucinations and delusions they experience are related to inadequately processed memories from earlier traumatic experiences.

We (Researchers from the University of Bristol and AWP) want to conduct a study to determine how common PTSD is in individuals with a psychotic disorder, and how frequently this is undetected in clinical services locally. This is important because increasing detection of PTSD is potentially an opportunity to improve outcomes for people with psychosis because effective psychological therapies for PTSD exist.

This study will also help to inform us in the development of a randomised controlled trial to test a PTSD-based psychological therapy in people with a psychotic disorder.

We are keen to hear from people who believe that their psychotic disorder might be related to highly stressful experiences earlier in their life and who would be willing to dedicate some time to talk to us about this, as well as to advise us on how best to approach this topic with service users within AWP. We are willing to reimburse individuals for their time and any travel expenses incurred.

If you are interested in this study and want to hear more about the project please contact Dr Michelle Phillips on 0117 3314016 or email: michelle.phillips6@nhs.net. All information will be kept confidential.

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Opportunity has arisen for a Dementia HIT PPI Facilitator

The Dementia Health Integration Team Patient and Public Involvement Facilitator role requires a considerable degree of personal confidence, initiative, independent working and networking with multiple agencies. Please see the job description for the aims and objectives, roles and responsibilities.

This post is available for 7.5 hours per week for up to 10 months. Please note this job is not open on a job share basis. You will work alongside the Dementia HIT co-lead Directors for PPI Lorna Robertson and Paula Shears, and liaise closely with the Dementia HIT coordinator Dr Jude Hancock.

Click here for further information about the Dementia HIT

How to apply: Please complete the Expression of Interest form, and send this with a copy of your CV with a cover letter to Dr Jude Hancock (jhancock1@nhs.net)

Dementia HIT PPI facilitator role (Apr16)

PPI Expression of Interest form_Apr2016

Closing date: 5pm on Thursday 12th May

Please note: Interviews will be held on the morning of Wednesday 18th May 2016 at Alzheimer’s Society, Suite A – first floor, Verona House, Filwood Road, Fishponds, Bristol, BS16 3RY. You must be available to attend an interview on this date. As part of this interview you will be required to give a 5 minute presentation answering the question ‘What is your experience of interacting and engaging with people affected by dementia?’ Please note, this should not be a powerpoint presentation.

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Involvement Opportunity – Alcohol in Pregnancy

What: Local researchers would like to recruit three or four women to help them plan how best to share new research findings about the effects of drinking low levels of alcohol during pregnancy. The Department of Health has recently published revised guidance on alcohol consumption see: https://www.gov.uk/government/news/new-alcohol-guidelines-show-increased-risk-of-cancer. The Bristol study is a comprehensive review of the evidence that supports this guidance. We are planning to run an event in Bristol to raise awareness of the guidelines and to promote understanding of what we know and don’t know about the effects of alcohol on pregnant women and their children.

For: Women who are pregnant or want to have a baby and have an interest in promoting guidance on alcohol consumption during pregnancy. We would like to involve women with different experiences and from different communities.

More information: We are currently planning to hold an event in July or September 2016 and there will be two or three planning meetings from May 2016. We will meet in central Bristol or on Whiteladies Road. Each meeting will last about 2 hours, and you will also be invited to any events we run. We offer payment for your time and travel expenses.

If you are interested: please contact Rosie Davies email: rosemary3.davies@uwe.ac.uk or on 0117 342 1248 by Tuesday 3rd May 2016. Everyone who gets in touch will be invited to a meeting to find out more and decide who will be involved. This meeting will be held on Monday 16th May from 11.00-12.30 am in central Bristol. It will last about an hour and a half with refreshments.

Alcohol in pregnancy Flier (PDF document)

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Involvement Opportunity – STROKE Prevention and Care Consultation

For: People with lived experience of STROKE

What: The Bristol Partnership for the Advancement of Stroke Prevention and Care (Stroke Health Integration Team [HIT] in development) is asking for your help. They are holding an event to consult with people with lived experience of STROKE to find their priorities for improving STROKE prevention and care across the Bristol, North Somerset and South Gloucestershire area, and to see who would be interested in more long term involvement with the HIT. Reasonable travel costs will be reimbursed (please get a receipt if using a taxi or bring your ticket if using public transport). Payment up to £20 per hour can be paid for a carer/helper to attend with you if you would like to bring one. Please ask them to bring their bank account details on the day.

Where: Vassall Centre, Gill Avenue, Bristol, BS16 2QQ (places to be booked in advance)

When: Friday 22nd April 2016, 10.30 am – 12.30 pm

More info and to book a place: If you want to attend or would like more information email mike.bell@bristol.ac.uk or phone Mike on 0117 3421249

STROKE Prevention and Care Programme

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Involvement Opportunity – Tardive dyskinesia and treatment outcomes Consultation

For: People who have personal experience, either as a service user or carer, of the impact of tardive dyskinesia. The research is particularly looking at the impact on people with a diagnosis of schizophrenia but we know other people, such as people with bipolar might also be affected and they are most welcome to attend also if they would like to contribute to this piece of work.

What: Tardive dyskinesia is an involuntary movement that causes the face, mouth, tongue and jaw to convulse, spasm and grimace. It is caused by long-term or high-dose of antipsychotic drugs, is difficult to treat and can be long lasting. The McPin Foundation is holding a consultation looking at tardive dyskinesia and the outcomes of treatment that are important to people affected by this particular medication side effect. The consultation will be led by the Cochrane Schizoprenia Group and will focus on whether the current research into tardive dyskinesia is evaluating outcomes that most matter to people affected and, if not, what outcomes should research be focusing on.

Where: The McPin Foundation, 32-36 Loman Street, London, SE1 0EH

When: 12.30 – 3.30 pm. on Friday 15th April 2016. Lunch will be provided. Attendees will receive £50 in payment and all reasonable travel expenses will be reimbursed.

More info: Phone Carla on 0207 9227875 or Megan on 0207 9227874

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Involvement Opportunity – Peer Director, Psychosis Health Integration Team

We are excited to offer an opportunity to join the leadership team of the newly formed Psychosis Health Integration Team (HIT).

The Psychosis HIT aims to hear the voices of people who experience psychosis, their families and carers, and those of staff in mental health services and other settings, in order to improve services across the city.

The Peer Director is an essential role that will offer crucial perspective of users and carers within the leadership team.

The role could be shared between two people if preferable.

The Peer Director would be supported by the other directors and Patient and Public Involvement mentor, Mike Bell.

More info: Peer Director Psychosis Health Integration Team If you are interested in applying email sarah.sullivan@bristol.ac.uk or simon.downer@bristol.ac.uk

Closing date: 22nd April 2016, 4 p.m.

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Involvement Opportunity – Task sequencing project for people living with dementia

For: Carers of people living with dementia.

What: To attend one hour and a half session with Dr Hazel Boyd to talk about how everyday tasks can be broken down in to steps that will make really useful prompts.

When: To be arranged.

Where: The interview with Dr Hazel Boyd will take place at Designability, Bath or a location convenient to you.

A £20 voucher to acknowledge involvement and cover expenses will be received.

Closing date and more information: Dr Hazel Boyd will finish recruiting at the end of April.

The Sequencing project is being led by Dr Hazel Boyd (hazelboyd@designability.org.uk) , Tel: 01225 824 103.

More information: http://www.designability.org.uk/researchproject/task-sequencing-for-people-living-with-dementia/

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Involvement Opportunity – Health and Care Data Consultation Panel Member

For: People who have experience of being a patient and or a carer

What: With basic information from the facilitator to participate in discussions with the panel. Light reading will be needed for agenda items. We appreciate that people come to each panel session, as various interlinking topics will be covered.

When, where and more info: Health data consultation

How to apply: Provide expression of interest with a short half page email or word document on their understanding of NHS and Care Data. We also look forward to a list of three things, you would like to see changed, in terms of NHS and Care Data processing and utility. Email info@thewellbeingpartnership.org.uk

Please also provide your name, email and telephone number so we can contact you if successful.

Closing date: 15th May 2016, with participants informed for the 12th May

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