Opportunity has arisen for a Dementia HIT PPI Facilitator

The Dementia Health Integration Team Patient and Public Involvement Facilitator role requires a considerable degree of personal confidence, initiative, independent working and networking with multiple agencies. Please see the job description for the aims and objectives, roles and responsibilities.

This post is available for 7.5 hours per week for up to 10 months. Please note this job is not open on a job share basis. You will work alongside the Dementia HIT co-lead Directors for PPI Lorna Robertson and Paula Shears, and liaise closely with the Dementia HIT coordinator Dr Jude Hancock.

Click here for further information about the Dementia HIT

How to apply: Please complete the Expression of Interest form, and send this with a copy of your CV with a cover letter to Dr Jude Hancock (jhancock1@nhs.net)

Dementia HIT PPI facilitator role (Apr16)

PPI Expression of Interest form_Apr2016

Closing date: 5pm on Thursday 12th May

Please note: Interviews will be held on the morning of Wednesday 18th May 2016 at Alzheimer’s Society, Suite A – first floor, Verona House, Filwood Road, Fishponds, Bristol, BS16 3RY. You must be available to attend an interview on this date. As part of this interview you will be required to give a 5 minute presentation answering the question ‘What is your experience of interacting and engaging with people affected by dementia?’ Please note, this should not be a powerpoint presentation.

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Involvement Opportunity – Alcohol in Pregnancy

What: Local researchers would like to recruit three or four women to help them plan how best to share new research findings about the effects of drinking low levels of alcohol during pregnancy. The Department of Health has recently published revised guidance on alcohol consumption see: https://www.gov.uk/government/news/new-alcohol-guidelines-show-increased-risk-of-cancer. The Bristol study is a comprehensive review of the evidence that supports this guidance. We are planning to run an event in Bristol to raise awareness of the guidelines and to promote understanding of what we know and don’t know about the effects of alcohol on pregnant women and their children.

For: Women who are pregnant or want to have a baby and have an interest in promoting guidance on alcohol consumption during pregnancy. We would like to involve women with different experiences and from different communities.

More information: We are currently planning to hold an event in July or September 2016 and there will be two or three planning meetings from May 2016. We will meet in central Bristol or on Whiteladies Road. Each meeting will last about 2 hours, and you will also be invited to any events we run. We offer payment for your time and travel expenses.

If you are interested: please contact Rosie Davies email: rosemary3.davies@uwe.ac.uk or on 0117 342 1248 by Tuesday 3rd May 2016. Everyone who gets in touch will be invited to a meeting to find out more and decide who will be involved. This meeting will be held on Monday 16th May from 11.00-12.30 am in central Bristol. It will last about an hour and a half with refreshments.

Alcohol in pregnancy Flier (PDF document)

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Involvement Opportunity – STROKE Prevention and Care Consultation

For: People with lived experience of STROKE

What: The Bristol Partnership for the Advancement of Stroke Prevention and Care (Stroke Health Integration Team [HIT] in development) is asking for your help. They are holding an event to consult with people with lived experience of STROKE to find their priorities for improving STROKE prevention and care across the Bristol, North Somerset and South Gloucestershire area, and to see who would be interested in more long term involvement with the HIT. Reasonable travel costs will be reimbursed (please get a receipt if using a taxi or bring your ticket if using public transport). Payment up to £20 per hour can be paid for a carer/helper to attend with you if you would like to bring one. Please ask them to bring their bank account details on the day.

Where: Vassall Centre, Gill Avenue, Bristol, BS16 2QQ (places to be booked in advance)

When: Friday 22nd April 2016, 10.30 am – 12.30 pm

More info and to book a place: If you want to attend or would like more information email mike.bell@bristol.ac.uk or phone Mike on 0117 3421249

STROKE Prevention and Care Programme

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Involvement Opportunity – Tardive dyskinesia and treatment outcomes Consultation

For: People who have personal experience, either as a service user or carer, of the impact of tardive dyskinesia. The research is particularly looking at the impact on people with a diagnosis of schizophrenia but we know other people, such as people with bipolar might also be affected and they are most welcome to attend also if they would like to contribute to this piece of work.

What: Tardive dyskinesia is an involuntary movement that causes the face, mouth, tongue and jaw to convulse, spasm and grimace. It is caused by long-term or high-dose of antipsychotic drugs, is difficult to treat and can be long lasting. The McPin Foundation is holding a consultation looking at tardive dyskinesia and the outcomes of treatment that are important to people affected by this particular medication side effect. The consultation will be led by the Cochrane Schizoprenia Group and will focus on whether the current research into tardive dyskinesia is evaluating outcomes that most matter to people affected and, if not, what outcomes should research be focusing on.

Where: The McPin Foundation, 32-36 Loman Street, London, SE1 0EH

When: 12.30 – 3.30 pm. on Friday 15th April 2016. Lunch will be provided. Attendees will receive £50 in payment and all reasonable travel expenses will be reimbursed.

More info: Phone Carla on 0207 9227875 or Megan on 0207 9227874

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Involvement Opportunity – Peer Director, Psychosis Health Integration Team

We are excited to offer an opportunity to join the leadership team of the newly formed Psychosis Health Integration Team (HIT).

The Psychosis HIT aims to hear the voices of people who experience psychosis, their families and carers, and those of staff in mental health services and other settings, in order to improve services across the city.

The Peer Director is an essential role that will offer crucial perspective of users and carers within the leadership team.

The role could be shared between two people if preferable.

The Peer Director would be supported by the other directors and Patient and Public Involvement mentor, Mike Bell.

More info: Peer Director Psychosis Health Integration Team If you are interested in applying email sarah.sullivan@bristol.ac.uk or simon.downer@bristol.ac.uk

Closing date: 22nd April 2016, 4 p.m.

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Involvement Opportunity – Task sequencing project for people living with dementia

For: Carers of people living with dementia.

What: To attend one hour and a half session with Dr Hazel Boyd to talk about how everyday tasks can be broken down in to steps that will make really useful prompts.

When: To be arranged.

Where: The interview with Dr Hazel Boyd will take place at Designability, Bath or a location convenient to you.

A £20 voucher to acknowledge involvement and cover expenses will be received.

Closing date and more information: Dr Hazel Boyd will finish recruiting at the end of April.

The Sequencing project is being led by Dr Hazel Boyd (hazelboyd@designability.org.uk) , Tel: 01225 824 103.

More information: http://www.designability.org.uk/researchproject/task-sequencing-for-people-living-with-dementia/

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Involvement Opportunity – Health and Care Data Consultation Panel Member

For: People who have experience of being a patient and or a carer

What: With basic information from the facilitator to participate in discussions with the panel. Light reading will be needed for agenda items. We appreciate that people come to each panel session, as various interlinking topics will be covered.

When, where and more info: Health data consultation

How to apply: Provide expression of interest with a short half page email or word document on their understanding of NHS and Care Data. We also look forward to a list of three things, you would like to see changed, in terms of NHS and Care Data processing and utility. Email info@thewellbeingpartnership.org.uk

Please also provide your name, email and telephone number so we can contact you if successful.

Closing date: 15th May 2016, with participants informed for the 12th May

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Opportunity to join one of the most exciting Patient & Public Involvement initiatives in the West of England – Professional Co-chair

People in Health West of England (PHWE) is a unique initiative promoting innovative and effective public involvement in research and evidence-based service improvement. From its inception People in Health West of England has been co-chaired by a public contributor Cathy Rice and a professional Nicky Williams. Nicky who was Deputy Director of Research and Innovation at North Bristol Trust has now moved on to take up the role of National Director for Support and Delivery of Health and Social Care Research in Wales. We would therefore like to recruit another professional to play the crucial leadership role Nicky has played around public involvement. As well as meeting our needs for a professional co-chair this is an exciting professional development opportunity for the right person.

More information: PHWE Strategy Group – Professional Co-chair Invitation and Role Description If after reading the invitation and role description, you would like to find out more contact David Evans, Academic Lead for the project David9.Evans@uwe.ac.uk or telephone 0117 328 8750

Closing date: Expressions of interest outlining what you would bring to the role along with a brief CV (one page maximum) should be sent by Monday 2nd May 2016 to Kim.Thomas@nihr.ac.uk

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Involvement Opportunity – AWP Research and Development Committee

The Avon and Wiltshire Mental Health Partnership NHS Trust (AWP)’s Research and Development Department have an opportunity for any service user, carer or member of the public to join their Committee.
Service users and carers bring a unique and essential perspective; and AWP are looking for people who will attend meetings and contribute to the decisions Research and Development make. AWP are committed to keeping service users and carers at the heart of their strategy and need representatives who have a passion for contributing to their research endeavour.

When: 1.5 hour meeting every three months

Where: In person, Bristol, venues confirmed in advance before each meeting

Payment: £10/hour plus travel expenses

If you’re interested, please complete the Expression of Interest form that can be found by clicking the link below.

Click here for more information

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Involvement Opportunity – University Hospitals Bristol ‘The Happy App’

For: Patients or members of the public

What: To involve patients and the public in developing App ideas, and get ideas about how they can engage patients and the public in the research

Where: Tutorial Room 3, UHBristol Education Centre, Upper Maudlin Street, Bristol, BS28AE (places to be booked in advance)

When: Tuesday 22 March 2016, 6-7 pm

More info: Happy App Lay Summary and PPI Email stephanie.smith-clarke@uhbristol.nhs.uk if you are interested in attending

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