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Who We Are

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Rosemary Davies

National Institute for Health Research Collaborations for Leadership in Applied Health Research and Care West, Research Fellow (Patient and Public Involvement)

Rosemary has been involved in health research as a mental health service user for over 12 years, including user-led research. She is just completing a PhD at the University of the West of England (UWE) on public involvement in health research. She is a member of INVOLVE, the National Institute for Health Research (NIHR) national advisory group on public involvement in health research; a service user advisor and co-applicant on the NIHR suicide prevention programme with the School for Social and Community Medicine at Bristol University, and a member of the Research and Development Committee of the local mental health NHS Trust.  Rosemary conducted the scoping study in 2009-10 at UWE which led to the creation of People and Research West of England. She is the Research Fellow (Patient and Public Involvement) in the joint involvement team, and is linked to the CLAHRC West (Collaboration for Leadership in Applied Health Research and Care).

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Hildegard Dumper

West of England Academic Health Science Network, Patient and Public Involvement Team Manager

Hildegard leads on PPI for the WEAHSN and heads a team that provides a shared PPI resource for the four core partners in PHWE. With a background in education, community development and social policy she moved into research after many years working in the refugee sector. She has carried out research and consultancy locally, nationally and internationally, specialising in the access of services by marginalised communities and has considerable experience in the use of community researchers. More recently she has worked in patient and public involvement in the health sector, working for a community health services provider organisation.

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Andy Gibson

University of the West of England, Associate Professor Patient and Public Involvement

Andy has just joined the Department of Health and Social Sciences at the University of the West of England as an Associate Professor in Patient and Public Involvement. Before this he led the development of patient and public involvement in the Peninsula Collaboration for Leadership in Applied Health Research and Care (PenCLAHRC). The main aim of Andy’s work was to embed meaningful patient and public involvement throughout the research carried out by PenCLAHRC. This included involving the public as both users and producers of research knowledge. He delivered this work in close collaboration with PenCLAHRC’s PPI team and PenPIG (Peninsula Public Involvement Group), a user led advisory group, made up of members of the public, service users and carers. Andy was also a member of the team that developed the Medical Research Council funded Public Impact Assessment Framework (PiiAF).

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Martin Gregg

Co-Chair / Public Contributor

Martin is a lay member of South Gloucestershire Clinical Commissioning Group (CCG) with specific responsibility for Patient and Public Involvement and Equalities.  An important aspect of this role is chairing the Improving Patient Experience Forum.  He is also a member of the Individual Funding Request panel.

Martin is keen that his role on the CCG is strategic, looking broadly at health needs and priorities and also informed and guided by the richness of individual patient stories.

Martin is a freelance consultant with experience in community engagement, research and voluntary sector policy.  He has been employed by South Gloucestershire Council (SGC) and by Council for Voluntary Service (CVS) South Gloucestershire.  Whilst at SGC Martin led the project to commission the Local Involvement Network (LINk) and is currently a member of the Healthwatch Advisory Group.

As part of Martin’s role with the Strategy Group he is attached as a public contributor member to Bristol Health Partners.

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Julie Hapeshi

Co-Chair / Deputy Director and PPI Lead, Research Design Service South West

Julie has a clinical background in nursing and midwifery but is no longer a practising clinician. She was the Gloucestershire Research and Development Support Unit (RDSU) Co-ordinator for ten years and has managed the Gloucester office of the Research Design Service South West (which superseded the RDSUs) since October 2008. Apart from supporting study design and grant applications in half of her time, the other half of her present role includes managing research delivery and research management and governance for the NHS organisations in Gloucestershire. She is also currently managing a multi-centre study on the surveillance of patients with Barrett’s oesophagus (BOSS) funded by the National Institute for Health Research (NIHR) Health Technology Assessment programme.

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Jo Osorio

Healthwatch Swindon

Like everyone connected with Healthwatch, Jo is committed to making sure local people are heard and that they influence health & care services effectively.  Jo has been living and working in Swindon for twenty seven years.  He was director of Age Concern from 1987 to 2009 and with Swindon Local Involvement Network until 2013.  Prior to that Jo was a community worker in Lambeth and in Peterborough between 1972 and 1987.  He has experience as a trustee of national, regional and local charities and as a member of an NHS primary care trust professional executive committee.

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Jan Rose

Public Contributor

Jan is a cancer survivor.  Her diagnosis for breast cancer was in 2009.  Her mother’s diagnosis for cancer was in the same year.

During her treatment Jan became aware of Patient and Public Involvement and how it worked to the benefit of patients and the public in terms of their treatment and care.  She is also aware how important research and service development is in providing better treatment and care.  It is for these reasons that Jan has been an active member of the 3 Counties Cancer Network and the 3 Counties Cancer Research Network.  These organisations ceased to exist in 2013 and 2014 respectively due to the reorganisation within the NHS.  Jan has been a patient representative on the Network Site Specific Group for Upper Gastro-intestinal cancer, served on panels for a number of Peer Reviews for cancer groups and also on a development project looking at the length of stay in hospital after breast surgery.

Since 2013 she has attended the Oncology Clinical Trials Feasibility Group Meetings at the Gloucestershire NHS Trust as a Patient Representative.  She is also a Patient Representative on the Cancer Patient Experience Group at the hospital.

In May 2014 Jan joined the People in Health West of England PPI Strategy Group as a Public Contributor as she is keen to support and encourage PPI within research across the region.

Jan became a Consumer Member of the National Cancer Research Institute Primary Care Clinical Studies Group in May 2014.

Ruth Sayers
Ruth Sayers

Public Contributor

Ruth lectured in Sociology for 13 years before becoming ill, and needing support for her mental health. Since 1998 Ruth has used her personal experiences to contribute to improving mental health services – through training professionals, research, evaluation, and commissioning.  She has also helped to develop and manage a range of services for women experiencing domestic abuse.  Ruth’s hearing is impaired. She has recently had other types of ‘patient experiences’ to draw on (A&E, maxilla-facial surgery, ENT, oncology).

Ruth’s work as a researcher has included developing a user-led project; sitting on steering and advisory groups; working collaboratively with academics to evaluate public involvement in research; and contributing patients’ perspectives to the Mental Health Research Network and The Cochrane Collaboration (Depression, Anxiety and Neurosis).  Ruth now works at The McPin Foundation, coordinating the Lived Experience and PPI elements of a multi-site study developing an intervention to improve primary care for people with diagnoses of schizophrenia and bipolar disorder.

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Angela Stagg

Public Contributor

Angela began her PPI work after she had personal experience of cancer.  Angela was fortunate to benefit from a pre-cutbacks period, when there was much more support and training in that specific field.  Before it was axed, she belonged to the local cancer services network user involvement group for some years. Angela chaired the (UIG) for two years, worked as PPI rep on several multidisciplinary groups such as service improvement including peer review, service reorganisation and helped rewrite patient information guides and leaflets.  Currently she is one of the lay members on an National Institute for Health Research (NIHR) affiliated clinical studies group overseeing a national research portfolio.  As an UWE Research Partner since 2009 she has worked on several research projects.  Angela was a public contributor on People in Research West of England (PRWE), and in a previous life was a Children’s Guardian in the family courts, which involved independent investigation of “cases” and working with a solicitor to represent the child/young person’s wishes and welfare.

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Louise Ting

Public Contributor

Louise is a researcher with a background in psychology and was first introduced to the field of PPI after a series of negative experiences in health services. She hopes that by drawing on these, she can help to shape future services in a way that allows anyone to have a say about the quality of the care that they are receiving and for this to be respected, listened to and acted upon.
Louise has been an active volunteer in various roles for over ten years, including but not limited to mentoring disabled children, teaching IT skills to the elderly, campaigning on societal issues, and advocacy for vulnerable people and their carers. Such work has informed the way she views the world as well as opened her eyes to the wealth of knowledge, experience and skills that the public can bring to what was traditionally seen as a professionals-only domain. This led to Louise being involved at length with Bristol Clinical Commissioning Group’s Modernising Mental Health programme, from a service user perspective.
She has also worked with Bristol City Council in the past and is currently conducting a National Institute for Health Research-funded study on service development for those with autism and additional health needs.

Sandra Tweddell
Sandra Tweddell

Public Contributor

Sandra’s career in education started as a teacher before moving onto leadership posts and finally lead inspector to Ofsted and trainer of inspectors. For the last 15 years she combined this with working as an International Education Consultant in countries such as Abu Dhabi, Uganda and the United States.  The work involved advising local, national and international governments on improving education through the evaluation of institutions and the management of change.

 

Sandra has lived with Type 1 diabetes since 1961 and is very conscious of varying levels of diabetes care across the country. As a result, she wanted to work to ensure that people with diabetes receive the best possible care to enable them to understand and manage their condition. Moving to Bristol, she found no local support groups so was instrumental in developing the structure of the Bristol Diabetes Support Network, which included a Strategy group involving members of the Bristol CCG and Bristol Community Health. This provided a forum for two-way communication of people’s experiences of diabetes care and developments in diabetes care. She is currently a public contributor to the WEAHSN working with the Digital Diabetes Coach initiative.

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Adele Webb

Public Contributor

Adele is a mother and grandmother.  As a carer for her own mother she welcomed the tremendous support she received from the NHS and from the caring agency network.  A Member of Gloucestershire NHS Foundation Trust since 2011 and working for the Members’ Involvement Forum, Adele has been part of a team undertaking observations of care of patients who do not easily have a voice.  She also conducts surveys on behalf of the Trust, interviewing carers of patients with dementia.

Adele’s teaching career culminated in headship until 2004.  She currently works as Education Officer in a Heritage and Tourist Information Centre.